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Öffentliche Institutionen und private Unternehmen investieren heute sehr viel Geld in die Forschung zur Arzneimittelsicherheit und in Risikomanagementprogramme – mit oftmals enttäuschenden Ergebnissen. Indem wir Patienten und Forscher zusammenführen, können wir bessere, schnellere und kostengünstigere Forschung betreiben.
MediGuard hat ein den vergangenen zwei Jahren mehr als 200 Forschungsprojekte durchgeführt, darunter Querschnittstudien, auf Patientenangaben beruhende Wirksamkeitsstudien, Studien zur Inanspruchnahme von Gesundheitseinrichtungen und zu wirtschaftlichen Auswirkungen auf das Gesundheitswesen.
- Download MediGuard Direct-to-Patient Research Broschüre (PDF)
- Download MediGuard Clinical Research Broschüre (PDF)
- Download MediGuard Publikationsliste (PDF)
MediGuard Poster, Präsentationen, Journal Submissions
- Cascade,EF., Bharmal,M., Rosen, S., Plummer, R.: Patient Preferences for Adherence Enhancing Tools. Journal of Communication in Healthcare 2010: (In press)
- Bharmal, M., Cascade, E., Gemmen, E.: Patient Perspectives in Comparative Effectiveness Research: Planning Studies Using Patient-Reported Outcomes Instruments. The Monitor December 2010: 52-56.
- Cascade, E., Stephenson, H., Bharmal, M., Cabell, C.: Direct-to-Patient Enrolment Strategies. Applied Clinical Trials Magazine September 2010: 44-50.
- Cascade, EF., Kalali, A., Mehra, S.; Meyer, J.: Trend Watch, Real-World Data on Atypical Antipsychotic Medication Side Effects. Psychiatry 2010: 7(7): 9-12.
- Cascade, EF., Kalali, A., Wigal, S.: Trend Watch, Real-World Data on Attention Deficit Hyperactivity Disorder Medication Side Effects. Psychiatry 2010: 7(4).
- Cascade, EF., Kalali, A., Kennedy, S.H: Trend Watch, Real-World Data on SSRI Antidepressant Side Effects. Psychiatry 2009: 6 (2) 16.
- Industry Standard Reports. Patient and Investigator Recruitment a 360-degree assessment of what drives and restricts recruitment for clinical trials. September 2009.
- Cascade E: Leveraging Social Networks to Conduct Research. ISPOR 15TH Annual Conference, May 15-19, 2010, Atlanta,GA.
- Cascade, E., Willey, V., Patel, T., McGhan, W., Plummer, R., Peterson, A.: Medication Adherence and Decision Making Processes in Patients with Coexisting Diabetes, Dyslipidemia and Hypertension. American Heart Association Meeting, November 14-18, 2009, Orlando, Florida.
- Plummer, R., Cascade, E.: Quality of Consumer Generated Adverse Event Reports. 25th International Conference on Pharmacoepidemiology & Therapeutic Risk Management, August 16-19, 2009.
- Plummer, C., Cascade, E.: iGuard.org Member Feedback on Opioid REMS program, FDA Public Comment, FDA-2009-N-0143, June 28, 2009.
- Cascade, E., Cooley, S., Hare, W.: Generating Time and Cost Efficiencies Without Comprising Data Quality Through Targeted Site Selection, Recruitment, Retention, and Monitoring, 2009 BIO International Convention, The Global Event for Biotechnology, May 18-21, 2009, Atlanta, Georgia.
- Cascade, E., Bass-Charlesworth, S.: Evidence-Based Feasibility Model: Leveraging Data to Inform Best Practice, ACRP 2009 Global Conference & Exhibition, April 24-28, 2009 - Denver, Colorado
- Cascade, E.: Direct-to-Consumer Activities Improve Study Recruitment Rates, ACRP 2009 Global Conference & Exhibition, April 24-28, 2009 - Denver, Colorado
- Plummer, C., Cascade, E.: Medication Guides: Top-Line Feedback from Patients Taking Antidepressants, FDA Public Comment, FDA-2008-N-0038, March 30, 2009.
- Cascade E, Plummer RC, Mangini NS: Real-World Side Effect Data on Cholesterol Medications: Outputs from an Online Patient Community, ISPOR 16th Annual Meeting, May 2011
- H-Mehler N, Nixon M, Casazza C, Gemmen E, Doyle J, Cascade E: Patient-Centric Observational Study on Correlates of Intent to Persist with Treatment, ISPOR 16th Annual Meeting, May 2011
- Cascade E, Kula-Prezwanski C, Stephenson H: Expanding a Patient-Centric Safety Registry from the US to Europe: Year 1 Learnings, 23rd DIA EuroMeeting, March 28-30 2011.
- Vaccarino A, Stills T, Bharmal M, Cascade E, Kalali A, Evans K: Does Data Collection from Online Communities Result in Biased Response? ISPOR 13th Annual European Congress, November 2010.
- Cascade E, Bharmal M: Use of Patient-reported Outcomes in On-Line Communities to Conduct Observational Comparative Effectiveness Research: A Pilot Study in Rheumatoid Arthritis. ISPOR 13th Annual European Congress, November 2010.
- Bharmal M, Cascade E: Psychometric Properties of the Rheumatoid Arthritis Disease Activity Index (RADAI) in a Community Population in the US. ISPOR 13th Annual European Congress, November 2010.
- Cascade, E., Bharmal, M., Garvert, W.: Drivers of Patient Interest in Clinical Trials, 46TH DIA Annual Meeting, June 13 - 17, 2010, Washington, DC.
- Cascade, EF., Bharmal, M., Rosen, S., Plummer, R.: Patient Preferences for Adherence Tools Across 10 Medical Conditions, ISPOR 15TH Annual Conference, May 15-19, 2010, Atlanta, GA.
- Bharmal, M., Cascade, E., Thiny, M.: Treatment Satisfaction with Medications for Gastroesophageal Reflux Disease: Results from a Larger Disease Registry, ISPOR 15TH Annual Conference, May 15-19, 2010, Atlanta,GA.
- Bharmal, M., Cascade, E., Gemmen, E.: Psychometric Properties of the Treatment Satisfaction Questionnaire for Medication in Patients with Gastroesophageal Reflux Disease, ISPOR 15TH Annual Conference, May 15-19, 2010, Atlanta, GA.
- Willey, VJ.,Peterson, A., Ajmera, MR., Manke AA., et al: Health Beliefs and Their Impact on Medication Adherence in Patients with Coexisting Diabetes, Dyslipidemia & Hypertension, ISPOR 15TH Annual Conference, May 15-19, 2010, Atlanta, GA.
- Mangini, N., Plummer, R., Cascade, E., Real World Comparison of Side-Effect Data for Cholesterol Medications. American Pharmacists Association (APhA) Annual Meeting, March 12-15, 2010, Washington, DC.
- Angeles, M., Plummer, R., Cascade, E., Evaluation of Patient Reported Reason for Use and Side Effects of Ten Common Herbal Supplements, American Pharmacists Association (APhA) Annual Meeting, March 12-15, 2010, Washington, DC.
- Plummer, R., Cascade, E.: Medication Guides: Opinions and Preferences of Patients Taking Antidepressants, 44th ASHP Midyear Clinical Meeting, December 6-10 2009, Las Vegas, NV.
- Bharmal, M., Cascade, E., Patient-Reported Comparative Effectiveness of Eight New-Generation Antidepressants. 16th Annual Meeting of ISOQOL, October 28-31, 2009, New Orleans, Louisiana.
- Cascade, E., Stephenson, H.: Patient-Reported Outcomes in a Vulnerable Population: A Pilot Study Conducted with a Novel Patient Community. ISPOR 12th Annual European Congress, October 24-27, 2009, Paris, France.
- Cascade, E., Stephenson, H., Cagar, A.: Patient Protocol Acceptability Assessment - A New Dimension for Increasing Study Enrollment, 45th Annual DIA Meeting, June 21-25, 2009, San Diego, CA.
- Bharmal, M., Cascade, E., Gemmen, E.: Leveraging Patient-Reported Outcome Methods to Test Hypotheses Prior to Initiating Comparative Effectiveness Studies. DIA 45th Annual Meeting, June 21-25, 2009, San Diego, California.
- Bharmal, M., Cascade, E., Gemmen, E.: Evaluation of Comparative Effectiveness: A Model for Generating Hypothesis and Determining Sample Sizes, ISPOR 14th Annual International Meeting, May 16-20, 2009, Orlando, FL.
- Cascade, E., Stephenson, H.: Direct-to-Consumer Activities Improve Study Recruitment Rates. ACRP 2009 Global Conference & Exhibition, April 24-28, 2009 - Denver, Colorado
- Cagar, A. , Cascade, E., Stephenson, H.: Patient Motivation for Participating in Clinical Trials: Results From A U.S. Rheumatoid Arthritis Study. 21st DIA Euro Meeting, March 23-25, 2009, Berlin, Germany.
- Plummer, R., Cascade, E., Cagar, A.: Consumer Opinions About Medication Safety in the United States, APhA annual Meeting, March 13, 2010, Washington DC.
- Plummer, R., Cascade, E. Bridging the Drug Safety Information Gap to Enable Consumers to Take a More Active Role in Their Healthcare. 43rd ASHP Midyear Clinical Meeting, December 7-11, 2008.
- Bharmal, M., Cascade, E., Gemmen, E. Are There Differences in Patient Satisfaction with Insomnia Medications? Pilot Results From a Novel Registry, 11th Annual ISPOR European Congress, November 8-11, 2008.
- Bharmal, M., Cascade, E., Miller, T., Gemmen, E. Are There Differences in Patient Satisfaction with Medications To Treat Benign Prostatic Hyperplasia? Pilot Results From a Novel Registry, 2008 ISOQOL Annual Conference, October 22-25, 2008.
- Cascade, E., Stephenson, DH: Developing and Leveraging a Patient-Centric Registry to Support Post-Marketing Safety Surveillance, 24th International Conference on Pharmacoepidemiology & Therapeutic Risk Management, August 17-20, 2008.
- Cascade, E.: Developing and Leveraging a Patient-centric Registry to Support Post-marketing Surveillance, 44th DIA Annual Meeting, June 22-27, 2008.
- Cascade, E., Bharmal, M., Gemmen, E.: Satisfaction with Medication: Preliminary Results from a Novel Patient Registry Tracking Satisfaction with Different Chronic Medications, ISPOR 13th Annual International Meeting, May 3-7, 2008.
Neben projektspezifischen Tätigkeiten befragt MediGuard.org seine Mitglieder regelmäßig, um kontinuierlich Rückmeldungen zu erhalten. Dazu wird an zufällig ausgesuchte Mitglieder ein validierter Fragebogen zur Zufriedenheit mit der Arzneimittelbehandlung versandt. In den vergangenen zwei Jahren hat MediGuard.org aus den Antworten von über 60.000 dieser Fragebogen eine Datenbank aufgebaut, die Ergebnisse zu mehr als 750 Medikamenten enthält.
Für weitere Informationen schreiben Sie uns research@mediguard.org.